Not Just Teeth
My Endless Journey of
Living with an Ultra-Rare Disease
Not Just Teeth
My Endless Journey of Living with an Ultra-Rare Disease
Not Just Teeth is my unending journey with an incredibly rare disease—one that has reshaped every aspect of my life and body in ways I never could have imagined. It’s a raw, honest look at navigating a condition that even specialists struggle to understand. I share my experiences not as medical advice, but as a way to document, process, and connect with others who know what it’s like to live with the unknowable.
Medical Disclaimer
The content on Not Just Teeth is for informational and personal storytelling purposes only.
I share my experiences with pEDS and related conditions in the hope that they may resonate with others, but nothing on this site should be considered medical advice.
I am not a medical professional, and the information provided here does not substitute for professional medical diagnosis, advice, or treatment. Always consult with a qualified healthcare provider before making any medical decisions, changing treatments, or addressing any health concerns.
Any reliance on the information shared here is solely at your own risk. I am not responsible for any actions taken based on the content of this blog. Medical science evolves, and what works for one person may not work for another.